Nuthin’ to See Here

September 30, 2013 at 9:22 PM Leave a comment


It’s been awhile since we’ve provided an update.  Back in August we hunkered down and went dark for a couple of weeks when things started slipping and we were dealing with her kidneys.  This time it’s exactly the opposite – things have been so (relatively) “normal” that there’s been little new information to provide from day to day.

Eliana restarted her dialysis treatments on the 16th, about 5 days after inserting the new catheter.  And its working!  After two full weeks of dialysis the old incision sites seem to be healing up quite nicely (Hank is craving an opportunity to pick off some scabs but Amy won’t let him), and there’s nothing seeping, oozing or dripping from the new incisions.  Any day without seeping, oozing or dripping is a good day.

The kid looks good, dang it, and we’ve gotten clearance to hold her both off and on dialysis, so we can settle in and coo at any time of the day or night.

And we do.

As the dialysis has become routine and all her numbers start to normalize she also has also turned into…well…an actual child.  As you might guess, it’s been tough to just stand around and observe this little tubed-up creature swaddled in a ball, lying in a crib and staring at the ceiling and walls all day.  And one might imagine she hasn’t been having much fun either.  But over the past few weeks as the treatment has kicked in she’s cut back on the yelling, calmed down tremendously and and become much more alert.  She’s looking around, tracking things with her eyes, reaching out at objects and generally just starting to act like an honest-to-goodness infant.  Awesome.

So where does that leave us?  Still in the NICU for the time being, but with that hope that things are genuinely improving.  We’re scheduled to begin our own crash course in dialysis and other home medical care around the end of October and we’ll see where it goes from there.  Possibly even – gasp! – out of here…


We hope,


Entry filed under: Uncategorized.

Once More Unto the (dialysis catheter) Breach A Disney Speedbump

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