So how was YOUR day?

June 2, 2014 at 10:03 PM 1 comment

A little before 9 am, Amy experienced what she described as her “first moment of terror” with Eliana’s treatment.  Why?  Because that was the moment our nurse cut clear through Eliana’s dialysis catheter.

Oh crap.

Two tiny little problems with that.  First, an open catheter means a wide highway for bacteria to run right up into her peritoneum and set up shop.  She’s already had peritonitis twice, and it’s no fun.

Second, too much damage to the catheter could mean it has to be surgically removed and a new one reinserted – easily a week in the hospital and yet ANOTHER surgery to endure.

But our vast 6 months of experience kicked in (well…Amy’s experience – I was at work and provided little more than moral support) and she HANDLED IT!  Yeah she did!

Amy and the nurse (no names, please) quickly grabbed the emergency clamp and shut off the line.  Amy was on the phone to nephrology immediately to alert them that the Lerners were coming to the hospital, grabbed snacks, an overnight bag, and formula for the baby, and was in the car to Hershey in less than 30 minutes.  At 8:59 I received a text that said “Heading to Hershey. <Nurse> cut the PD cath. So mad; apologized profusely.”

Then at 10:49 a second text: “Cath fixed. Getting antibiotics.”  I barely had enough time to start thinking about contingency plans for after school pickup, possible backup meeting coverage, hospital overnights and all the other fun stuff that comes along with an admission, and the problem was already fixed.  Instead of facing another major surgery they were home by lunchtime.

What lessons do I take from this experience?

(1) When we say “no scissors around the tubes” we really, really, REALLY mean it.  Let’s just say I don’t think that mistake will happen a second time.

(2) Systems work.  We’ve trooped off to the hospital enough times that we’re getting unfortunately good at it.  Knowing what to pack (always take snacks/drinks, and an overnight bag is a good precaution), how to communicate (cell phones/texting doesn’t work in the ER, but you can email on the WiFi) and who to call (saved hours by going right to nephrology instead of the ER) will go a long way towards a successful visit.

(3) Preparation helps Luck.  Surgery was avoided because the cut left enough tube (maybe 4 inches) to attach a new connector set.  That’s probably because the tube was taped in a loop, like it’s supposed to be. No loop under the tape and the result might have been different.

(4) For those who mock, this is the reason I’m Mr. Worst Case Scenario, thank you very much. The Worst doesn’t happen very often (otherwise it would be The Normal), but when you’re prepared you’ll be home by lunchtime.

Thank you, and good night.



Entry filed under: Uncategorized.

Let the Huh Continue The Baby’s Off Button

1 Comment Add your own

  • 1. Bubbe  |  June 2, 2014 at 11:04 PM

    Worry not There will not be scissors on my watch. Glad all worked out well.


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