Light at the end of the tunnel

June 3, 2015 at 10:19 PM 4 comments

Many a cynic has said that when you see the light at the end of the tunnel it might just be the headlamp of an oncoming train.  I’ve said it myself a few times…and on occasion I’ve probably been the train.

But today I was neither the cynic nor the train.  And it felt good.

Eliana wasn’t even a month old when we had to make a decision about whether to start her on dialysis.  It was hard, and we had lots of questions. Our nephrologists put us in touch with another family who had a child on dialysis, and they were gracious enough to share their time and experiences with us.  Then after Eliana’s diagnosis a group called Parent-to-Parent found another family whose child had the same rare condition.

It was maybe a couple of hours out of our lives, but so important.  It’s one thing to hear from the doctors, but it’s another thing completely to hear from parents who had walked the path we were considering.  If their families had done it and succeeded, maybe we could too.

Not two minutes after I arrived in the room tonight our nephrologist walked in and said (paraphrasing slightly): “We have a family downstairs that’s trying to decide whether to start their child on dialysis, and I was hoping you’d be willing to talk with them and let them meet Eliana so they can see there really can be a light at the end of the tunnel.”

So I did.  And it felt good – for so many reasons.

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Entry filed under: Uncategorized.

Catch ya’ on the rebound Waiting is the Hardest Part

4 Comments Add your own

  • 1. Bonnie Lerner  |  June 3, 2015 at 11:18 PM

    Dammit! You did it again.
    Hope you were able to be a comfort to that family. Glad that she is closer to the end of the tunnel

    Reply
  • 2. Cuzzin Maisie  |  June 4, 2015 at 12:52 PM

    I’m weeping with joy and am so glad and proud that you can “pass it on”.

    Reply
  • 3. Paula T.  |  June 4, 2015 at 10:13 PM

    Doin’ the Hokey Pokey cause this is what it’s all about.

    Reply
  • 4. Sandra Pittman  |  June 16, 2015 at 11:04 PM

    We’re so happy for Eliana and your whole family. She looks so happy in the photos you posted. You have come full circle… now helping other families facing the same diagnosis.

    Reply

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