Waiting is the Hardest Part

June 10, 2015 at 12:56 PM 2 comments

The waiting is the hardest part
Every day you see one more card
You take it on faith, you take it to the heart
The waiting is the hardest part

Thank you, Tom Petty.


OK…so…Eliana moved out of Intensive Care (PICU) to Intermediate Care over the weekend, then got downgraded another step to “floor” status and moved again on Monday evening.  So far, so good.  Test results look reasonably good, and she doesn’t have to wear all the freakin’ sensors at this point.

The only thing attached to her is the central line for her Fentanyl (pain killer), and that’s pretty much the main thing that’s keeping her in the hospital right now. They’ve been weaning her off the Fentanyl for most of the past two weeks – first pretty quickly, but now in slow steps over the past 5 days or so. Withdrawal is nothing to mess with, and we certainly don’t want to deal with that at home, but it’s hard to stand it when this is the only thing left.  But if things stay on schedule and the Fentanyl taper works, it’s possible she could be home for the weekend.


So for now we wait…and hope that nothing pops up to make them want to keep her longer.

Of course now that Eliana is feeling better we can do fun and cute stuff with her again, so here are a few pics from the last couple days for your viewing pleasure.

Tongue Check

Tongue Check!  Shira and Eliana making sure they can still catch flies.


Tummy Time

Tummy Time. Pretty impressive considering that she has a scar from sternum to pelvis.



Pee Shirt


Eliana’s new Pee Shirt (delivered Tuesday; thanks Bubbe & Grandpa.)


Entry filed under: Uncategorized.

Light at the end of the tunnel I Got 99 Problems and a Hip Ain’t One

2 Comments Add your own

  • 1. Cuzzin Maisie  |  June 10, 2015 at 5:01 PM

    We’re all pickled tink! [or tinkled pick]

  • 2. Sandra Pittman  |  June 16, 2015 at 11:06 PM

    I love the shirt. How adorable and appropriate!!!


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