Archive for June, 2017

Well said

Lest you think we’re wallowing in speech therapy angst, here are two times recently when Eliana got her thoughts across just fine. That same day she and I were hanging out at the hotel room she waltzed over and cranked the knob on the dishwasher, turning it on. I ran up behind her turned it off, and said, “No, that’s what turns it on,” and she said, “Yeah, and also off.”

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Proof we didn’t spend the whole time in the hotel.

When the begging gets rough Hank likes to pull out “And I want a pony,” a phrase he perfected when Shira was smaller and whinier, always asking for ice cream or a trip to the playground or the movies or another Polly Pockets doodad. Shira always just rolled her eyes or times when she was particularly irked you could see the little angry cloud above her head, but Eliana responded with “But I don’t want a pony.” As in, quit trying to change the subject.

Yeah, sometimes she gets her point across well enough.

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June 20, 2017 at 12:51 PM 2 comments

It’s all connected


We’re on a roll! We had a second family vacation last week—Pittsburgh—and it seems  all we came home with is a raging flareup of eczema, lucky Eliana.

 

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The Pittsburgh Zoo and Aquarium

Now that we’re back home, I’m thinking about how her care is all connected. Take speech therapy: She’s almost caught up, according to her therapist. And yet… I’ve noticed lately that she sometimes has trouble explaining to us what she wants, she’ll say things like “Come here” and “Look at that” when she’s got a lot more going on in her head, and I’ve also noticed how much we talk about food and eating, which is another of her delays, so it stands to reason it would be difficult for her to find the right words. She’s still figuring out how to eat, much less talk about it in complete sentences.

 

An example: On vacation she and I spent one day lazing around the hotel room while Shira and Hank went to a meeting (You’ll have to ask the two of them about that.) Eliana was dragging me into the other room of the suite and saying “Come here,” and finally did the sign for eating and said “eat” so that I could understand what she wanted. So is it that she’s having trouble formulating the words or simply recognizing that she’s hungry and eating is what would make her feel better? It’s all connected.

Today at lunch she laughed and said, “You’re eating with your neck!” prompting me to explain I was swallowing my sandwich and she could see me swallowing it. The things normal eaters miss out on.

June 19, 2017 at 3:34 PM 1 comment


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